Recommended reading lists on Lyme Disease by Sharon Hawkes, MLIS.
READING LIST FOR LYME DISEASE
© 2008 Sharon Hawkes, MLIS
Lyme Disease Digital Library, www.Lymebrary.com
Lang, D.V. (2004). Coping with Lyme Disease: A Practical Guide to Dealing with Diagnosis and Treatment. New York: Henry Holt. ISBN 0805075631. 3rd ed., 337 p., bibliography, index, and resource guide.
Updated and revised since its original 1993 edition, with contributions by Kenneth Liegner, MD and actress Mary McDonnell. Recommended in its original release by Library Journal, the book is an overview of the history, epidemiology, symptoms, treatment, and prevention of Lyme disease.
Vanderhoof-Forschner, K. (2003). Everything You Need to Know about Lyme Disease and Other Tick-Borne Disorders. Hoboken, N.J.: John Wiley. ISBN 0471407933. 2nd ed., 270 p., ill., bibliography, and index.
Written by the founder of the Lyme Disease Foundation, this overview includes diagnosis and treatment dilemmas in Lyme disease and its co-infections, finding support groups, and self-advocacy. It includes a forward by Willy Burgdorfer, PhD, discoverer of the bacterium that causes Lyme. Recommended by Library Journal in its original edition.
Edlow, J.A. (2004). Bull’s-eye: unraveling the medical mystery of Lyme disease. New Haven: Yale University Press. ISBN 0300103700. 2nd ed., 285 p., ill., appendices, bibliography, glossary, and index.
The vice chairman of emergency medicine at Beth Israel Deaconess Medical Center and assistant professor at the Harvard Medical School describes the history and personalities involved in the discoveries and controversies of Lyme disease, including a balanced look at both the “conventional” and “alternative” views. Recommended by the New England Journal of Medicine and Booklist.
Murray, P. (1996). The Widening Circle: A Lyme Disease Pioneer Tells Her Story. New York: St. Martin’s Press. ISBN 0312140681. 1st ed., 321 p., bibliography and index.
This is a first-person account of the discovery of Lyme disease, from one of the two women who first documented and alerted health officials to a variety of symptoms in adults and children in the Lyme, CT area. Forward by Kenneth Liegner, MD, Afterword by Brian Fallon, MD. Recommended by Booklist and Publishers Weekly.
To be released, June, 2008:
Weintraub, P. (2008). Cure Unknown: Inside the Lyme Epidemic. New York: St. Martin’s Press. ISBN 0312378122. 1st ed., 304 p.
Both a first-person account of navigating the politics and contradictions of the disease, and a look at the players and the controversies in diagnosis, treatment, and advocacy, this book hopes to do for Lyme disease what And the Band Played On did for HIV and Osler’s Web did for chronic fatigue. Advanced recommendations by Discover magazine, Psychology Today, and the April 28 edition of Library Journal.
Gardner, T. (2001). Lyme disease. In J.S. Remington and J.O. Klein (Eds.), Infectious Diseases of the Fetus and Newborn Infant (5th edition) (pp. 519-641). New York: W.B. Saunders Company. ISBN 0721679765
With 888 citations from across the scientific journal and research spectrums, this is one of the most comprehensive works on Lyme disease in the medical field. In addition to her focus on the possibility of gestational Lyme disease, Gardner spends ample time on the etiology and pathology of the disease in the general population. Sadly, the subsequent 6th edition replaced this installment with a much shorter one by a different author.
Books for children
Rodda, G. and Zampaglione, J. (ill.) (2005). Lyme in Rhyme. [Hawleyville, CT]: Pumpkin Hill Productions. ISBN 65470879. Soft cover, 32 p., ill.
Rodda’s self-published chant for children received kudos from the CDC’s head of the Division of Vector-Borne Diseases. Suitable for ages 4-10.
Yannielli, L. (2004). Lyme Disease. Philadelphia: Chelsea House Publishers. USBN 0791074633. 110 p., ill., maps, short bibliography and index.
Part of the series Deadly Diseases and Epidemics, the book is a quick overview of the history and spread of the disease, and provides information on the symptoms, tests, treatment, and prevention of Lyme, suitable for ages 10-14.
Clark, E. (2007, July/August). Lyme disease: one woman’s journey into tick country. Yankee Magazine, pp. 86-98.
Clark combines research, interviews, and personal experience in her investigation of the history, epidemiology, symptoms, and current controversies surrounding treatment. May also be accessed online at
Cameron et al. (2004). Evidence-based guidelines for the management of Lyme disease [Electronic version]. Expert Review of Anti-Infective Therapy 2(1), S1-S13. Retrievable from http://ilads.org/files/ILADS_Guidelines.pdf
These treatment guidelines from the International Lyme and Associated Diseases Society advocate treatment regulated by patient response, and discuss the probability of chronic and persistent Lyme.
Bransfield, R.C. (2007, December). Lyme disease, comorbid tick-borne diseases, and neuropsychiatric disorders [Electronic version]. Psychiatric Times(24), 14. Retrievable online at http://www.psychiatrictimes.com/display/article/10168/55056
This overview of tick-borne disease, emphasizing Lyme-induced psychiatric disorders, is by the associate director of psychiatry at Riverview Medical Center in Red Bank, NJ. It includes extensive references and bibliography.
Hamlen, R.A. and Kliman, D.S. (2007, February). Lyme Disease: Etiology, Neuropsychological Sequelae, and Educational Impact [Electronic version]. Newspaper of the National Association of School Psychologists 35(5), p. 34-36. Retrievable online from
This discussion reviews the literature concerning psychological and cognitive Lyme symptoms in school-aged children, and suggests how school mental health practitioners can help. It includes tables of symptoms, references, and website suggestions.
Wormser et al. (2006). The clinical assessment, treatment, and prevention of Lyme disease, human granulocytic anaplasmosis, and babesiosis: clinical practice guidelines by the Infectious Diseases Society of America [electronic version]. Clinical Infectious Diseases 43, 1089-1134.
These treatment guidelines from the Infectious Diseases Society of America advocate specific durations of treatment, and discuss the improbability of chronic and persistent Lyme.
JAMA Patient Page: Lyme disease.
This single-page handout covers common symptoms, treatment, and prevention. Includes color diagram of tick removal. Available online at
Hirsch, L. (2007). Tick Bites.
A one-page poster from the Nemours Foundation on the importance of prompt tick removal and tick bite prevention. It is available online at http://kidshealth.org/PageManager.jsp?lic=1&article_set=36502&cat_id=20221
Stafford, K.C. III (2007, fall). Tick Management Handbook: An Integrated Guide for Homeowners, Pest Control Operators, and Public Health Officials for the Prevention of Tick-Associated Disease [Electronic edition]. 84 pp. Retrievable online at
This is a detailed guide to understanding the Ixodes scapularis tick, including steps to avoid contracting the disease through personal protection and property management, written by the Chief Entomologist for the State of Connecticut. Includes full-color photos and diagrams.
Bleeker, L. (2005). Lyme Disease — http://faculty.washington.edu/chudler/lyme.html
Part of the “Neuroscience for Kids” website, funded by the National Center for Research Resources, the web page presents a brief overview for ages 12 and up on the cause, spread, symptoms, prevention, and treatment of Lyme disease. Includes graphs, photos, and links to more resources.
Cameron, D. (n.d.). Lyme Disease Practice and Research E-Book. — http://lymeproject.com/Dr_Cameron/Cases/1Tick/Introduction_E_Book.htm
Interactive, easy-to-read e-book from the 2007 head of the International Lyme and Associated Diseases Society, it includes information on symptoms, treatment, and the impact of tick-borne disease on the patient. It includes case studies and an invitation to share stories.
Edlow, J.A. (2007). Tick-Borne Diseases, Lyme. Retrievable from http://www.emedicine.com/emerg/TOPIC588.HTM
The author of Bull’s-eye: unraveling the medical mystery of Lyme disease (see above) contributes an online article to identify symptoms and understand treatment, on EMedicine.com, an HonCode website. Includes tables and references.
New York Online Access to Health (2007, June). Lyme disease. Retrievable from http://www.noah-health.org/en/bns/disorders/lyme/index.html.
Links and articles through the NOAH website, which uses qualified librarians and healthcare professionals to provide consumer health information.
State of Rhode Island Department of Health (n.d.). Lyme disease. Retrievable from http://www.health.ri.gov/disease/communicable/lyme/index.php
This website serves as a clearinghouse of information on Lyme disease in the northeast, including information for patients, physicians, and educators on advocacy and support resources, tick testing, and a discussion of the chronic Lyme disease debate. Many links.
Limited copyright permission: this list may be copied freely as long as it is copied in its entirety, including the copyright date and this permission. © 2008 Sharon Hawkes